"I'm so glad she can laugh about this," her mother Melinda Wilson said on Wednesday.

This symptom when Ciara was seven months old helped convince doctors that her parents, Melinda and Aidan, weren't imagining things, something was seriously wrong with their baby girl.

So began a blur of tests and treatment for the Baranduda family as Ciara was diagnosed with neuroblastoma, a tumour that was pressing on her spinal cord.

"They thought I wasn't going to walk for the rest of my life," Ciara said.

But they were wrong.

On Saturday Ciara and her parents will share her story with the crowd at Albury's Alexandra Park as the 2019 Border Relay For Life hero.

IN OTHER NEWS:

Ciara can't remember her early days at Royal Children's Hospital but her parents most certainly do.

Chemotherapy began within an hour of them hearing the diagnosis and for three months the trio stayed in Melbourne, with older sisters Chelsea, Bailey and Lacey visiting on weekends.

In October 2013, aged 21 months, the youngster underwent nearly 12 hours of surgery to remove part of the tumour.

"Basically they cut her spine in half and lifted everything up like a lid, that's what the big scar is down her back," her mother said.

RELATED:

The following April Ciara took her first steps.

"Every challenge she's had thrown at her, she's overcome," Ms Wilson said.

"She's just had the fight in her from day one.

"It was all about waiting to see if she would have the co-ordination to dance, to hop, to skip, to jump, even.

"We always had in the back of our mind, OK don't get your hopes up, because, you know, it may not happen.

"But at the same time we just had so much faith in her because she was so determined."

Now Ciara loves jumping on the trampoline, plays soccer and does Little Athletics.

And she's really excited about being the relay hero this year, describing how she was "rolling in a ball" upon hearing the news.

A couple of months ago the family learned the tumour, "our ticking time bomb", had started to grow again, with another scan to be done in January.

The little girl has also been referred to long-term cancer care.

"It's all about now teaching Ciara how to live with this," Ms Wilson said.

"She's kind of, not embraced it, but it's a part of her and she knows that."

"It's a part of me," Ciara nodded in agreement.